Življenjske vloge po poškodbi hrbtenjače – kvalitativna fenomenološka raziskava

Avtorji

DOI:

https://doi.org/10.55707/jhs.v11i2.157

Ključne besede:

delovna terapija, paraplegija, doživljanje sprememb, okupacijska identiteta

Povzetek

Poškodba hrbtenjače je poškodba živčnih celic, ki skrbijo za prenos signalov med možgani in preostalim telesom, kar lahko povzroči trajne okvare telesnih funkcij pod mestom okvare in ima velik vpliv na vsakodnevno življenje osebe. V proces soočanja z nepričakovanimi spremembami so vključeni tudi delovni terapevti. Namen raziskave je bil raziskati, kako osebe po poškodbi hrbtenjače doživljajo spremembe življenjskih vlog. Kvalitativna raziskava je bila izvedena na vzorcu 6 oseb s paraplegijo z metodo poglobljenih intervjujev. Iz kvalitativne tematske analize so izšle štiri glavne teme in devet podtem. Izkazalo se je, da je sodelovanje v vlogah za osebe po poškodbi hrbtenjače velikega pomena, saj želijo ostati enakovredni člani družbe. Sprejemanje sprememb je proces, ki poteka dlje časa, v tem procesu je pomembna podpora socialnega okolja, najpogostejša ovira pa nedostopno grajeno okolje. Različne prilagoditve fizičnega in okupacijskega okolja osebam po poškodbi hrbtenjače omogočajo ohraniti vloge in identiteto, izpolniti cilje ter živeti zadovoljujoče življenje. Vpogled v življenjske vloge uporabnika lahko delovnemu terapevtu pomaga pri razumevanju in načrtovanju nanj usmerjene terapije, ki ga bo opolnomočila in mu olajšala vrnitev v domače okolje.

Literatura

American Occupational Therapy Association. (2020). Occupational therapy practice framework: Domain and process – Fourth edition. The American Journal of Occupational Therapy, 74(2), 1–87. https://doi.org/10.5014/ajot.2020.74S2001

Aujoulat, I., Marcolongo, R., Bonadiman, L. in Deccache, A. (2008). Reconsidering patient empowerment in chronic illness: A critique of models of self-efficacy and bodily control. Social Science in Medicine, 66(5), 1228–1239. https://doi.org/10.1016/j.socscimed.2007.11.034

Beauchamp, M. R., Scarlett, L. J., Ruissen, G. R. Scarlett, L. J., Ruissen, Connelly, C. E., McBride, C. B., Casemore, S. in Ginis, K. A. M. (2016). Peer mentoring of adults with spinal cord injury: a transformational leadership perspective. Disability and Rehabilitation, 38(19), 1884–1892. https://doi.org./10.3109/09638288.2015.1107773

Braun, V. in Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org./10.1191/1478088706qp063oa

Buchtler, K., Carrard, V., Jochum, H., Ledermann, K., Lude, P. in Scheel-Sailer, A. (2021). Body experience during post-acute rehabilitation in individuals after a traumatic spinal cord injury: a qualitative interview-based pilot study. Spinal Cord Series and Cases, 7, 14. https://doi.org/10.1038/s41394-020-00375-1

Charlifue, S. in Holicky, R. (1999). Ageing and spinal cord injury: The impact of spousal support. Disability and Rehabilitation: An International, Multidisciplinary Journal, 21(5–6), 250–257. https://doi.org/10.1080/096382899297675

Charlifue, S., Botticello, A., Kolakowsky-Hayner, S. A., Richards, J. S. in Tulsky, D. S. (2016). Family caregivers of individuals with spinal cord injury: exploring the stresses and benefits. Spinal Cord, 54, 732–736. https://doi.org/10.1038/sc.2016.25

Craig, A., Nicholson Perry, K., Gost, R., Tran, Y. in Middleton, J. (2015). Adjustment following chronic spinal cord injury: Determining factors that contribute to social participation. British Journal of Health Psychology, 20(4), 807–823. https://doi.org/10.1111/bjhp.12143

Dickson, A., Ward, R., O’Brien, G., Allan, D. in Ronan O’Carroll, R. (2011). Difficulties adjusting to post-discharge life following a spinal cord injury: An interpretative phenomenological analysis. Psychology, Health in Medicine, 16(4), 463–474. https://doi.org./10.1080/13548506.2011.555769

Divanoglou, A. in Georgiou, M. (2017). Perceived effectiveness and mechanisms of community peer-based programmes for Spinal Cord Injuries—a systematic review of qualitative findings. Spinal Cord, 55, 225–234. https://doi.org/10.1038/sc.2016.147

Engblom-Deglmann, M. L. in Hamilton, J. (2020). The Impact of Spinal Cord Injury on the Couple Relationship: A Grounded Theory Exploration of the Adjustment Process. Journal of Couple in Relationship Therapy, 19(3), 250–275. https://doi.org./10.1080/15332691.2020.1746459

Gassaway, J., Jones, M. L., Sweatman, W. M., Hong, M. B. S., Anziano, P. in DeVault, K. (2017). Effects of Peer Mentoring on Self-Efficacy and Hospital Readmission After Inpatient Rehabilitation of Individuals With Spinal Cord Injury: A Randomized Controlled Trial. Archives of Physical Medicine and Rehabilitation, 98(8), 1526–1534. https://doi.org/10.1016/j.apmr.2017.02.018

Hammel, J., Magasi, S., Heinemann, A., Gray, D. B., Susan Stark, S., Kisala , P., Carlozzi, N. E., Tulsky, D., Garcia, S. F. in Hahn, E. A. (2015). Environmental Barriers and Supports to Everyday Participation: A Qualitative Insider Perspective From People With Disabilities. Archives of Physical Medicine and Rehabilitation, 96(4), 578–588. https://doi.org./10.1016/j.apmr.2014.12.008

Jeyathevan, G., Cameron, J. I., Craven, B. C., Munce, S. E. P. in Jagla, S. B. (2019). Re-building relationships after a spinal cord injury: experiences of family caregivers and care recipients. BioMedCentral Neurology, 19(1), 117. https://doi.org/10.1186/s12883-019-1347-x

Jug, M. (2019). Acute traumatic spinal cord injury – Pathophysiology and modern treatment concepts. Zdravstveni Vestnik, 88(9–10), 444–457. https://doi.org/10.6016/ZdravVestn.2911

Kardatos, A., Evangelopoulos, M. E. in Vlamis, J. (2021). The use of occupational therapy in the rehabilitation of patiens with spinal cord injuries. Acta Orthopaedica Et Traumatologica Hellenica, 72(2), 196–206. https://www.eexot-journal.com/index.php/aoet/article/view/204

Kielhofner, G. (1985). Model of Human Occupation: Theory and application. WillamsinWilkins.

Kielhofner, G., Mallinson, T., Crawford, C., Nowak, M., Rigby, M., Henry, A. in Walens, D. (1998). The occupational performance history interview: OPHI-II: version 2: a user’s manual. University of Illinois College of Applied Health Sciences.

Kielhofner, G. (2002). Model of Human Occupation: theory and application (third). Lippincott Williams in Wilkins.

Kielhofner, G. (2008). Model of Human Occupation: theory and application (fourth). Lippincott Williams in Wilkins.

Klebine, P. (2022). Understanding spinal cord injury: Part 1 - The body before and after injury. Model Systems Knowledge Translation Center. https://msktc.org/sci/factsheets/Understanding_SCI_Part_1

Liddle, J., Phillips, J., Gustafsson, L. in Silburn, P. (2018). Understanding the lived experiences of Parkinson’s disease and deep brain stimulation (DBS) through occupational changes. Australian Occupational Therapy Journal, 65(1), 45–53. https://doi.org/10.1111/1440-1630.12437

Mandelc, N. in Lebar, C. (2022). Rokomet na invalidskih vozičkih kot okupacija pri osebah s poškodbo hrbtenjače. Revija za Zdravstvene Vede, 9(1), 3–16. https://doi.org/10.55707/jhs.v9i1.125

National Institute of Neurological Disorders and Stroke. (25. 7. 2022). Spinal Cord Injury. https://www.ninds.nih.gov/health-information/disorders/spinal-cord-injury

Nayar, S. in Stanley, M. (ur.). (2015). Qualitative Research Methodologies for Occupational Science and Therapy, Routledge. https://doi.org/10.4324/9780203383216

Noreau, L. in Boschen, K. (2010). Intersection of Participation and Environmental Factors: A Complex Interactive Process. Archives of Physical Medicine and Rehabilitation, 91(9), 44–53. https://doi.org./10.1016/j.apmr.2009.10.037

Oakley, F., Kielhofner, G. in Barris, R. (1985). An occupational therapy approach to assessing psychiatric patients’ adaptive functioning. American Journal of Occupational Therapy, 39(3), 147–154. https://doi.org/10.5014/ajot.39.3.147

Puzić, N. (2016). Ocenjevanje bolnikov po okvari hrbtenjače od poškodbe do popolne reintegracije. Rehabilitacija, 15(1), 121–127. https://ibmi.mf.uni-lj.si/rehabilitacija/vsebina/Rehabilitacija_2016_S1_p121-127.pdf

Quigley, C. M. (1995). Impact of Spinal Cord Injury on the Life Roles of Women. The American Journal of Occupational Therapy, 49(8), 780–786. https://doi.org/10.5014/ajot.49.8.780

Scott, P., McKinney, K., Perron, J., Ruff, E. in Smiley, J. (2017). Measurement of Participation: The Role Checklist Version 3: Satisfaction and Performance. https://doi.org/10.5772/intechopen.69101

Taylor, R. R. in Kielhofner, G. (2017). Kielhofner’s model of human occupation: theory and application (fifth). Wolters Kluwer.

Turner, E., Wehman, P., Wallace, J. F. idr. (1997). Overcoming obstacles to community reentry for persons with spinal cord injury: assistive technology, Americans with Disabilities Act and selfadvocacy. Journal of Vocational Rehabilitation, 9(2), 171–186. https://doi.org/10.1016/S1052-2263(97)00039-1

Umeasiegbu, V. I. in Bishop, M. L. (2017). Rehabilitation Services, Self-Advocacy and Psychosocial Adaptation as Determinants of Employment among Persons with Spinal Cord Injury. Journal of Physical Medicine Rehabilitation and Disabilities, 3(2), 1–7. https://doi.org/10.24966/PMRD-8670/100020

Vogrinc, J. (2008). Kvalitativno raziskovanje na pedagoškem področju. Univerza v Ljubljani, Pedagoška fakulteta. https://core.ac.uk/download/pdf/35123064.pdf

World Health Organization. (16. 4. 2024). Spinal Cord Injury. https://www.who.int/news-room/fact-sheets/detail/spinal-cord-injury

Zbornica delovnih terapevtov Slovenije. (2018). Kodeks etike delovnih terapevtov Slovenije in Standardi prakse v delovni terapiji. Zbornica delovnih terapevtov Slovenije. https://www.zdts.si/index.php/dokumenti/send/2-splosni-dokumenti/2-kodeks-etike-delovnih-terapevtov-slovenije

Zveza paraplegikov Slovenije. (n. d.) Odstranimo ovire. https://www.zveza-paraplegikov.si/odstranimo-ovire

Žorga, S. (1999). Pojmovanje razvoja. Socialna pedagogika, 3(3), 207–214.

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Objavljeno

2025-01-09

Kako citirati

Maier, E., & Sicherl, Z. (2025). Življenjske vloge po poškodbi hrbtenjače – kvalitativna fenomenološka raziskava. Revija Za Zdravstvene Vede, 11(2), 3–18. https://doi.org/10.55707/jhs.v11i2.157

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