Razvoj Evropskega vodiča za pripravo kvalitetnih nacionalnih programov za obvladovanje raka
Ključne besede:
rak, programi, vodiči, zdravstveni sistemiPovzetek
Nacionalni programi za obvladovanje raka (NPOR) so javni zdravstveni programi, katerih namen je zmanjšati pojavnost raka in umrljivost za rakom ter izboljšati kakovost življenja bolnikov z rakom. Evropo še vedno zaznamujejo nesprejemljive neenakosti na področju obvladovanja raka, tako med državami članicami, kot znotraj njih, zato sta priprava in implementacija kvalitetnega NPOR ključnega pomena za vsako državo. Da bi državam pomagali razviti kvalitetne NPOR, je bil pripravljen Evropski vodič za pripravo kvalitetnih NPOR (Vodič). Knjižica je prvi in edinstven tovrstni dokument v Evropi. V tem članku je opisan postopek razvoja Vodiča, njegovi cilji in strukturirane vsebine. Vzpostavljeni so bili trije metodološki pristopi: izvedba vprašalnika o vsebinah obstoječih NPOR v državah članicah, na Norveškem in v Islandiji; priprava Vodiča samega ter izbira kazalnikov, ki se uporabljajo za spremljanje NPOR. Vodič je sestavljen iz treh sklopov - preprečevanje raka, celostna oskrba in podporne funkcije v zdravstvenem sistemu. Vodič je živ dokument. Države članice, bolniki, organizacije, znanstvene in strokovne skupnosti lahko dajejo predloge za stalno izboljševanje vsebin vodiča.
Literatura
Albreht, T., Martin - Moreno, J. M., Jelenc, M., Gorgojo, L. and Harris, M. (2015). European guide for quality national cancer control programmes. Ljubljana: National Institute of Public Health. Retrieved on 1/21/2020 from the Internet: https://cancercontrol.eu/archived/uploads/images/European_Guide_for_Quality_National_Cancer_Control_Programmes_web.pdf.
Albreht, T., Jelenc, M. and Gorgojo, L. (2013). From “on paper” to “into action”: development of National Cancer Control Programmes in the EU. In: Martin-Moreno, J. M., Albreht, T., Radoš Krnel, S. (eds.). Boosting Innovation and Cooperation in European Cancer Control. Ljubljana: National Institute of Public Health of the Republic of Slovenia & World Health Organization on behalf of the European Observatory on Health Systems and Policies, pp. 209-242.
Albreht, T. and Pribaković Brinovec, R. (2009). Fighting against cancer today: a policy summary. Ljubljana: National Institute of Public Health. Retrieved on 12/5/2019 from the Internet: http://www.euro.who.int/__data/assets/pdf_file/0010/124867/e94392.pdf?ua=1.
Atun, R., Ogawa, T. and Martin - Moreno, J. M. (2009). Analysis of National Cancer Control Programmes in Europe. London: Imperial College. Retrieved on 12/4/2019 from the Internet: https://core.ac.uk/download/pdf/297067.pdf.
Coebergh, J. W. and Albreht, T. (2008). Should the EU also wage war against cancer? And if so; how? Foreword and afterthoughts to this special issue on cancer control at the European level. Eur J Cancer; 44, No. 10, pp. 1341–1344.
Coleman, M. P., Alexe, D. M., Albreht, T. and McKee, M. (eds.) (2008). Responding to the challenge of cancer in Europe. Ljubljana: National institute of Public Health. Retrieved on 12/5/2019 from the Internet: http://www.euro.who.int/data/assets/pdf_file/0011/97823/E91137.pdf.
Commission of the European Communities. Communication from the Commission to the European parliament, the Council, the European economic and social committee and the Committee of the regions on Action Against Cancer: European Partnership COM (2009) 291 Final. Brussels: COM, 2009. Retrieved on 12/11/2019: https://op.europa.eu/en/publication-detail/-/publication/
b8279345-430b-11e4-a0cb-01aa75ed71a1/language-en.
Council of the European Union (2008). Council Conclusions on reducing the burden of cancer: 2876th Employment, social, policy, health and consumer affairs: Council meeting. Luxembourg. Retrieved on 1/20/2020 from the Internet: http://www.eu2008.si/en/News_and_Documents/Council_Conclusions/June/0609_EPSCO-cancer.pdf.
European Union: European Parliament (2008). European Parliament resolution on combating cancer in the enlarged European Union, B6-0132/2008 / P6-TAPROV (2008)0121. Brussels: European Parliament. Retrieved on 12/6/2019 from the Internet: http://www.europarl.europa.eu/sides/getDoc.do?pubRef=-//EP//TEXT+TA+P6-TA-2008-0121+0+DOC+XML+V0//EN.
Gorgojo, L., Harris, M. and Garcia - Lopez, E. (2012). National Cancer Control Programmes: Analysis of Primary Data from Questionnaires. Ljubljana: National Institute of Public Health.
Howard, R. (2008). Organising a comprehensive framework for cancer control. In: Coleman, M. P., Alexe, D. M., Albreht, T. and McKee, M. (eds.). Responding to the challenge of cancer in Europe. Ljubljana: National Institute of Public Health, pp. 113–133.
Jelenc, M., Van Hoof, E., Albreht, T., Meglic, M., Seljak, M. and Radoš Krnel, S. (2012). Joint Action European Partnership for Action Against Cancer. Arch Public Health, 70, št. 1, str. 24.
National Health Service (2014). National Cancer Strategy-Report (2014). London: National Health Service and Public Health. Retrieved on 12/21/2019 from the Internet: https://www.gov.uk/government/publications/the-national-cancer-strategy.
Institut National du Cancer - INCA (2014). Plan cancer 2014-2019: guérir et prévenir les cancers:donnons les męmes chances ŕ tous, partout en France. Paris: Institut National du Cancer. Retrieved on 11/22/2019 from the Internet http://www.e-cancer.fr/le-plan-cancer.
Radoš Krnel, S., Albreht, T. and Martin - Moreno, J. M. (2013). Joint Action European Partnership for Action Against Cancer-EPAAC. In: Martin - Moreno, J. M., Albreht, T. and Radoš Krnel, S. (eds.). Boosting Innovation and Cooperation in European Cancer Control. Ljubljana: National Institute of Public Health of the Republic of Slovenia & World Health Organization on behalf of the European Observatory on Health Systems and Policies, str. 9–33.
Romero, Y., Trapani, D., Johnson, S., Tittenbrun, Z., Given, L., Hohman, K., Stevens, L., Torode, J. S., Boniol, M. and Ilbawi A. M (2018). National cancer control plans: a global analysis. Lancet Oncol, 19, št. 10, str. e546-555.
Norwegian Ministry of Health and Care Services (2013). Together-against cancer: National Cancer Strategy 2013-2017. Oslo: Norwegian Ministry of Health and Care Services. Retrieved on 10/11/2019 from the Internet: https://www.regjeringen.no/
contentassets/07cd14ff763444a3997de1570b85fad1/i-1158_together-against_cancer_web.pdf.
Oar, A., Moraes, F.Y., Romero, Y., Ilbawi, A. and Yap, M. L. (2019). Core elements of national cancer control plans. A tool to support plan development and review. Lancet Oncol, 20, ppr. e645-52.
World Health Organization (2002). National cancer control programmes: policies and managerial guidelines. 2nd ed. Geneva: WHO. Retrieved on 12/19/2019 from the Internet: http://www.who.int/cancer/publications/nccp2002/en/.
